Growing up, I don’t remember being told that I was a carrier of the sickle cell trait. Maybe I wasn’t born during a time when testing was mandatory for all newborns, like it is now. In fact, growing up I can only remember hearing about the disease once. There was one little girl in our community who had […]
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Are you passionate about raising awareness for Sickle Cell Disease? Do you want to be a part of a community creating positive change that leads to a cure? Then join Elle Cole, writer, speaker, podcast host, and Sickle Cell Mom, at the Howard University 17th Annual Cure Sickle Cell Now MOVE ON Event on September
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During this episode I share information about sickle cell disease in honor of National Sickle Cell Awareness month. History to Explore \Nigeria has a population of 112 million people. About 25% of adults there carry the sickle cell trait (source). According to the World Health Organization, more than 300,000 babies with severe hemoglobin disorders are
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My Special Aflac Duck is fantastic for children and their caregivers. Don’t just take my word for it. Watch this video to get a better understanding of the duck and how it’s already making a difference.
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Have you heard anyone say sickle cell is a disease only black people get? This statement is a myth, in fact, Black People are not the only Sickle Cell Patients. Anyone can have sickle cell disease (SCD). It’s true that it’s more common in Black people, but anyone can be born with it, which is
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Throughout the month of August, I was asked, what are you doing this year for Sickle Cell Awareness Month? Every year I try to do something different and dynamic, but the exact concept wasn’t evident at first. In 2014, after visit St. Jude Children’s Hospital for the first time, I started #30forSickleCell. The purpose of
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A Virtual Sickle Cell Convention is coming up Aug 25-Aug 29. I am sharing this event because it will be one of the most comprehensive and fun events you’ll ever attend about sickle cell. The Sickle Cell Community Consortium held some of the best conferences I’ve ever attended, and I attend lots of conferences. This
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Northwestern Mutual Foundation sponsored this post. All opinions are my own and may not reflect the sponsor’s views. On Feb 3, 2008, the United Nations General Assembly established World Sickle Cell Day to help raise awareness about sickle cell disease’s most common genetic disorder worldwide. This year, June 19, 2021, is our thirteenth year
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The Ultimate Sickle Cell Activity Book Written for preteens and teens, The Ultimate Sickle Cell Activity Book is an educational resource for everyone who wants to learn more about sickle cell disease. The book educates readers from start to finish using word searches, crossword puzzles, secret codes, writing prompts, fill-in-the-blanks, and more. Cost $19.99 Order Now The
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ABC’s of Sickle Cell Disease Written for children ages 5-12, ABC’s of Sickle Cell is an educational resource for parents, caregivers, and children. The book breaks down terms and concepts for children diagnosed with Sickle Cell Disease (SCD). The author simplifies the information so even a child could understand how this genetic blood disorder affects the body.
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