Parenting a child with Sickle Cell Disease isn’t easy, but it can be done with grace, finesse, and love.

Sickle Cell Disease
Virtual Sickle Cell Caregivers Summit Nov 12-14
Sickle Cell Caregivers are invited to an online summit November 12-14 full of engaging dialogue, dynamic presentations, and caregiver networking. Many families with loved ones living with sickle cell may not immediately identify with the word caregiver. Still, if they ...
Health & Recipes, Sickle Cell Disease
A companion for children with sickle cell disease
My Special Aflac Duck is fantastic for children and their caregivers. Don't just take my word for it. Watch this video to get a better understanding of the duck and how it’s already making a difference.
Parent, Sickle Cell Disease
Sickle Cell is not a Black Disease, it's a blood disease
Have you heard anyone say sickle cell is a disease only black people get? This statement is a myth, in fact, Black People are not the only Sickle Cell Patients.Anyone can have sickle cell disease (SCD). It’s true that it’s ...
Sickle Cell Disease
National Sickle Cell Awareness Month
Throughout the month of August, I was asked, what are you doing this year for Sickle Cell Awareness Month? Every year I try to do something different and dynamic, but the exact concept wasn’t evident at first. In 2014, after ...
Sickle Cell Disease
Peer support SCD Companion App Event with Author Elle Cole July 26 at 6pm ET
STRESS is a word we all can relate to, but for those who are patients or caregivers stress can have a greater impact. With back to school season around the corner and the lingering pandemic we need to take sometime ...
Sickle Cell Disease
World Sickle Cell Day 2021
I’m so excited to share that this year I’ll be participating in a 24 hour World Sickle Cell Day Virtual Extravaganza. All across the world there will be different sickle cell educational events. However here in the United States, organizations ...
Sickle Cell Disease
30 for Sickle Cell | In September raise awareness about Sickle Cell
I need your help. Nationwide people are protesting and stating that black lives matter. While I am not one to be on the front lines holding signs because the safety of my family during this pandemic is really important to ...