Sickle Cell

The Third Annual Sickle Cell Caregiver Summit Recap

The Third Annual Sickle Cell Caregiver Summit, hosted by the Sickle Cell Community Consortium (SCCC) and Cleverly Changing LLC, spanned four days from November 16th to 19th, 2023. This summit provided a comprehensive platform for caregivers, patients, researchers, and advocates to engage in crucial discussions, workshops, and networking opportunities focused on sickle cell disease. Day …

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Virtual Sickle Cell Caregivers Summit Nov 12-14

A Caregiver Summit is For Sickle Cell Families

Sickle Cell Disease

Sickle Cell Caregivers are invited to an online summit November 12-14 full of engaging dialogue, dynamic presentations, and caregiver networking. Many families with loved ones living with sickle cell may not immediately identify with the word caregiver. Still, if they provide love, support, and care to someone with an illness, they are caregivers. How the …

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A companion for children with sickle cell disease

A New Companion for Children With Sickle Cell Disease

Health & Recipes, Sickle Cell Disease

My Special Aflac Duck is fantastic for children and their caregivers. Don’t just take my word for it. Watch this video to get a better understanding of the duck and how it’s already making a difference.

Sickle Cell is not a Black Disease, it's a blood disease

Black People Are Not the Only Sickle Cell Patients #SickleCellis

Parent, Sickle Cell Disease

Have you heard anyone say sickle cell is a disease only black people get? This statement is a myth, in fact, Black People are not the only Sickle Cell Patients. Anyone can have sickle cell disease (SCD). It’s true that it’s more common in Black people, but anyone can be born with it, which is …

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Help us Define What is Sickle Cell?

Sickle Cell Disease

Throughout the month of August, I was asked, what are you doing this year for Sickle Cell Awareness Month? Every year I try to do something different and dynamic, but the exact concept wasn’t evident at first. In 2014, after visit St. Jude Children’s Hospital for the first time, I started #30forSickleCell. The purpose of …

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Peer support SCD Companion App Event with Author Elle Cole July 26 at 6pm ET

Let’s Talk About Stress and SCD

Sickle Cell Disease

STRESS is a word we all can relate to, but for those who are patients or caregivers stress can have a greater impact. With back to school season around the corner and the lingering pandemic we need to take sometime to unpack the upcoming year together. Let’s talk about stress and SCD so we can …

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World Sickle Cell Day 2021

Sickle Cell Disease

I’m so excited to share that this year I’ll be participating in a 24 hour World Sickle Cell Day Virtual Extravaganza. All across the world there will be different sickle cell educational events. However here in the United States, organizations like the Sickle Cell Consortium and CayenneWellness are hosting an amazing event for families. Sickle …

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