It’s National Sickle Cell month and I’m back with a new post about raising children with Sickle Cell anemia. When my daughter was little, I heard so many horror stories online that we didn’t do much because I lived in ...
Parenting a child with Sickle Cell Disease isn’t easy, but it can be done with grace, finesse, and love.
It was a cool autumn night beside the Baltimore Inner Harbor. Guests were eager with anticipation to see what the Ruby Ball would reveal. Baltimore’s Visitor Center was crimson red like the blood that flows through our veins. The guests ...
As you know World Sickle Cell Day is very close to my heart. Everyday that I look at my daughter and she lives pain-free is a blessing. So far with a healthy diet and drinking plenty of fluids her life ...
2017 was a year of purpose and praise. Each year, the dedicated staff of St. Jude Children’s Research Hospital work to fulfill founder Danny Thomas’ dream to ensure that “No child [dies] in the dawn of life.” The mission to ...
Podcast: Play in new window | Download Hematologists, sickle cell patients, and families with loved ones living with sickle cell disorders are hoping for a universal cure for sickle cell patients. In 1982, doctors at St Jude Children’s Research Hospital were ...
Thursday night September 15, 2016, The Divine Nine and St. Jude Supporters gathered in Long View Gallery in Washington, DC. Longtime friends and supporters joined together during Black Caucus week for fun, celebration, awareness, social engagement, and a call to service. ...
Recently, I read a Forbes Article entitled, “Why CRISPR Is An Attractive Approach To Treat Sickle Cell Disease” it states “Using CRISPR to edit a short segment of DNA in the cells, they activated a genetic switch that effectively raised ...