Did you know the most common genetic disorder in the world is sickle cell disease? Sickle cell disease can affect anyone, but it is mainly a genetic blood disorder that is NOT contagious. Infants are born with the disorder when they receive certain genetic markers from their parents. Both parents must be carriers of the […]
Sickle Cell Disease Can Affect Anyone (#SCD Day 2) Read More »
In 1968, fifty-eight years after the first person in the United States was diagnosed with sickle cell disease African-American physician Dr. Rudolph Jackson helped establish the sickle cell program at St. Jude Children’s Research Hospital. Even today, the hospital remains a leading center for sickle cell care worldwide. In fact, the St. Jude sickle cell
St. Jude and History of Sickle Cell Disease Read More »
June 19th is World Sickle Cell Day. According to the American Society of Hematology, Sickle Cell Disease (SCD) is the most common inherited blood disorder in the world. In fact, it is estimated that about 100,000 Americans have Sickle Cell Disease. In Maryland alone, The Maryland Department of Health states that 1 in every 256
World Sickle Cell Day 2019 Read More »
It was a cool autumn night beside the Baltimore Inner Harbor. Guests were eager with anticipation to see what the Ruby Ball would reveal. Baltimore’s Visitor Center was crimson red like the blood that flows through our veins. The guests knew the reason for the night was one of bittersweet joy because sickle cell disease
The Ruby Ball Sickle Awareness and Fundraising Gala Recap Read More »
As you know World Sickle Cell Day is very close to my heart. Everyday that I look at my daughter and she lives pain-free is a blessing. So far with a healthy diet and drinking plenty of fluids her life has been fine. However, as she grows I learn that when she transitions into adult
5 Facts About Sickle Cell You Should Know – World Sickle Cell Day Read More »
Have you heard of the Divine Nine? Prior to becoming a St. Jude Ambassador, I didn’t know about the Divine Nine. These nine phenomenal fraternities and sororities are affectionately known as The Divine Nine because of their commitment to community outreach.” The nine historically Black Greek Letter Organizations (BGLOs) make up the National Pan-Hellenic Council,
St. Jude is Committed to Helping Sickle Cell Patients Read More »
Hematologists, sickle cell patients, and families with loved ones living with sickle cell disorders are hoping for a universal cure for sickle cell patients. In 1982, doctors at St Jude Children’s Research Hospital were the first to cure the genetic blood disorder using a bone marrow transplant. In fact, in 2014, I had the privilege of
Possible Cure for Sickle Cell Found in Paris Read More »
Thursday night September 15, 2016, The Divine Nine and St. Jude Supporters gathered in Long View Gallery in Washington, DC. Longtime friends and supporters joined together during Black Caucus week for fun, celebration, awareness, social engagement, and a call to service. We also joined to discuss and increase awareness about our need to continually support Sickle
Sickle Cell and St Jude: A Call To Service Read More »
One of the largest sickle cell foundations is the Sickle Cell Disease Association of America. The goal of the SCDAA is “to advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search
Tomorrow Sept 13th is the #SCDAA #SickleCell Twitter Party Read More »
Kyle’s story sheds light on the need for people living with sickle cell disorder to trust their doctor. Kyle was hospitalized over a thousand times. For many sickle cell patients, hospitalizations are inevitable. As a result, sickle cell patients and their families should research their medical professionals and find the best specialists who will give them the care
Do You Trust Your Doctor? #sicklecell Read More »
