Recently, I read a Forbes Article entitled, “Why CRISPR Is An Attractive Approach To Treat Sickle Cell Disease” it states “Using CRISPR to edit a short segment of DNA in the cells, they activated a genetic switch that effectively raised the levels of fetal hemoglobin in red blood cells, turning the cells healthy.” 1. Can […]
Can Editing DNA Help Sickle Cell Patients #30forSickleCell Read More »
St. Jude Children’s Research Hospital is one of the institutions at the forefront of sickle cell disease (SCD) research. The hospital does clinical research at their facility in Memphis, TN. Then they transfer their findings to help healthcare professionals around the world offer better care to children and more hope for adults with sickle cell.
Hope For Adults with Sickle Cell #30forSickleCell Read More »
Ever wondered why I call my sickle cell awareness campaign #30forsicklecell? Well, September is Sickle Cell Awareness Month and it is 30 days long. Unfortunately, it seems that Sickle Cell only gains national attention for 30 days, and while I mainly run my campaign to raise awareness about sickle cell during the month of September,
Why #30forSickleCell? Sickle Cell Awareness Month Read More »
The long awaited, State of Sickle Cell Disease 2016 Report from the American Society of Hematology is now available. September is National Sickle Cell Awareness Month so I have made it my mission to stay in tune with the medical advances available to sickle cell patients. This is my first post of 30 this month
NEW State of Sickle Cell Disease 2016 Report #30forSickleCell Read More »
In September of 2014, I started a segment on Cleverly Changing entitled “30 for Sickle Cell.” My goal was to help raise awareness about knowing your Sickle Cell Trait status and why it is extremely important. One of my long-term missions on Cleverly Changing is to help future parents and all people in general, desire
Health Moment: The Hidden Dangers of Sickle Cell Trait #30forsicklecell Read More »
I’m always reminded that God’s got this! He still has the world in His hands. We cannot take time off of life to just STOP. No, we must keep going and continue to fight for our families. We also must fight for joy to remain within our lives every day. During the month of September,
Fighting Sickle Cell on House Call With Dr. Mac (Part 2) #30forSickleCell Read More »
It’s great when you meet someone whose mission in life is to help others. Dr. Mac is an inspirational doctor, Mom, and podcast producer. If you have not listened to her show, Housecall with Dr. Mac, you should. The show empowers the listener with up-to-date health information. Dr. Mac is on a mission to help
Housecall With Dr. Mac Podcast Sharing Our Story #30forSickleCell Read More »
The lights were dim, but the room was cheerful. Everyone was gathered to celebrate a wonderful cause, St. Jude Children’s Research Hospital. The music set the atmosphere as we thought about how many patients are blessed by the incomparable care they receive from St Jude. The larger-than-life size pictures of St. Jude patients brought into
St. Jude/NPHC Call to Service Reception #30forSickleCell Read More »
UPDATE!!! Enough signatures were collected. The following post is from the SCDAA & SCD Community in order for this bill to past there needs to be 93,006 signatures by October 22, 2014. We need you to act fast, many more signatures are needed. WE PETITION THE OBAMA ADMINISTRATION TO: Declare Sickle Cell Disease a national
Signatures Needed: Sickle Cell Treatment Act Bill H.R. 5124 #30forSickleCell Read More »
It’s important for people to understand that if you have a family member or a friend who is living with Sickle Cell Disease or any chronic illness it’s not what you say, but what you do that makes the biggest difference. What can you do to be supportive? 1. Be willing to listen There are
You Are Not Alone: Be supportive #30forSickleCell Read More »
