Living with Sickle Cell Anemia isn’t easy, but a cure does exist. Recently, my heart was warmed as I watched the story of Jozlyn Miller. She is a young 13 year old girl who was born with this genetic disorder and has lived with the battles that having Sickle Cell anemia bring. Jozlyn now has […]
Sickle Cell in the News: One Triumphant Story Read More »
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7th Annual Sickle Cell Walk (1st ReCap) Read More »
While reading about four year old Caesar Sant, a four year old child prodigy, who has already suffered from 2 strokes, my heart aches for his parents, and I pray for his continued health. Knowing your child is suffering is one of the hardest lessons a parent can learn to endure. Then, it is even
Sickle Cell Awareness and Prodigy Caesar Sant Read More »
Saturday Sept. 7th is Maryland State #Sickle cell picnic. FREE Food & Entertainment! RSVP @ 410-955-6132 Where: Druid Hill Park, Parkie Lakeside Pavilion Grove Rd. Baltimore, MD 21216 Cost: FREE RSVP: By September 4, 2013 to Kim Coppage 410-955-6132, select option #2 Provide your telephone number, number attending, and the names and ages of the children
Sickle Cell Events: September 7, 2013 is Maryland State #Sicklecell picnic Read More »
I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many challenges that come along with Sickle Cell Disease (SCD) that I did not foresee. Regarding her overall health
Health Moment: Sickle Cell Update – 4 Years Old and Summer is Here Read More »
Join us and the Sickle Cell Disease Association of America, Inc. (SCDAA) for National Sickle Cell Advocacy Day 2013 Tuesday, June 25, 2013 at 6:00 PM – Wednesday, June 26, 2013 at 5:00 PM (EDT) in Alexandria, VA Location: Hilton Alexandria Mark Center Hotel 5000 Seminary Road. Alexandria, VA 22311 Sickle Cell Anemia is a health epidemic affecting many families in America,
National Sickle Cell Advocacy Day 2013 – June 25 and 26 Read More »
My daughter recently had her second Trans-Cranial Doppler (TCD) test.The TCD is an ultrasound used to monitor the blood flow in the blood vessels of the brain to check whether or not the patient is at risk for a stroke. The test is completed once a year in most sickle cell patients. Thankfully, the we received
Sickle Cell Health Moment: TCD, Sleep Apnea, How to Detect a Crisis Read More »
This year my family will take a trip to Great Wolf lodge, a family friendly resort and water park. I am excited about the trip and the break, but also concerned about my daughter’s Sickle Cell Disease (SCD) and pool safety. As many of you may know, one of my daughters is living with Sickle
Sickle Cell and Pool Safety Read More »
One of our daughters was diagnosed with Sickle Cell Disease when she was a couple of weeks old. Specifically, the doctor told us she had (SS) Sickle Cell Anemia. So, what is Sickle Cell Anemia? It is a genetic disorder, in which there are a smaller number of red blood cells than the body should
Sickle Cell Disease Read More »
I first met Zarifa Roberson when I was doing my 30 for Sickle Cell blog posts at the Stomp Out Sickle Cell 5k walk held in DC. Zarifa is a great inspiration and her quarterly magazine benefits those living with disabilities and people wanting to learn more about disabilities. Her passion for others really stood
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