Six years ago, I had a vision. I wanted to create a space where sickle cell caregivers could gather, learn, connect, and feel understood. I wanted caregivers to have a place where their voices mattered, their experiences were valued, and their well-being was a priority.

What began as an idea and a series of conversations has grown into a meaningful gathering of caregivers, sickle cell warriors, healthcare professionals, advocates, researchers, and community leaders from around the world.

This November, I am excited to celebrate another milestone as I co-host the 6th Annual Sickle Cell Caregiver Summit alongside two incredible women, Brenda Green of The B Strong Group and Cynthia Moorer of Discovering Moorer2Life.

From November 13–15, 2026, we will come together virtually to learn, share resources, strengthen our support networks, and celebrate the people who stand beside individuals living with sickle cell disease.

Why This Summit Is Personal to Me

As the mother of twin daughters, one of whom lives with sickle cell disease and Type 1 diabetes, I understand how caregiving can shape every aspect of your life.

I know what it feels like to advocate during medical appointments, navigate school accommodations, research treatment options, and make difficult decisions while trying to create a childhood filled with joy, adventure, and possibility.

Now, as my daughters prepare to graduate from high school, I am navigating a new chapter of motherhood. I am learning how to support their growing independence while continuing to advocate for their health and well-being.

I am also caring for my aging mother, which has given me an even deeper appreciation for the experiences of caregivers supporting multiple generations.

Caregiving changes as our loved ones grow and their needs evolve. Yet one thing remains constant: caregivers need support, too.

We spend so much time making sure the people we love have what they need. The Caregiver Summit is a reminder that our needs, dreams, health, and happiness matter, too.

Through Cleverly Changing, my children’s health education books, and my advocacy work, I have dedicated myself to making health information accessible to families. Co-founding the Caregiver Summit in 2021 was a natural extension of that commitment.

Meet the Women Behind the 2026 Caregiver Summit

This year’s summit brings together three caregiver-led organizations committed to education, advocacy, collaboration, and community empowerment.

Together, we are continuing the important work of creating an event that centers caregivers and recognizes their invaluable contributions to the sickle cell community.

Our 2026 Theme: Caregivers Impact

This year’s theme, Caregivers Impact: Educating, Leading, and Collaborating, reflects the powerful role caregivers play in shaping the future of sickle cell care.

Why You Should Attend

The Caregiver Summit is more than a conference. It is an opportunity to reconnect with your purpose, discover practical resources, and meet people who understand your journey.

• Learn about sickle cell disease treatment options and emerging therapies.
• Explore practical strategies for navigating medical emergencies.
• Discover ways to prioritize caregiver mental health and wellness.
• Connect with caregivers from around the world.
• Learn about research, healthcare policy, and advocacy opportunities.
• Participate in interactive networking and wellness activities.
• Engage children and young people through creative workshops.
• Celebrate exceptional caregivers and community advocates.

Whether you are a parent, grandparent, spouse, sibling, friend, healthcare professional, or community advocate, there is a place for you at this summit.

2026 Sickle Cell Caregiver Summit: Full Agenda

We have planned three days of education, meaningful conversations, wellness activities, networking, and celebration.

All session times are listed in Eastern Standard Time (EST). The agenda and speakers are subject to change.

Friday
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Saturday
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Sunday

Friday Spotlight: Transformative Treatment Panel

Please note: Saturday’s children’s and youth workshops run concurrently with selected adult sessions.

Saturday Spotlight: Youth Sessions

Caregiver Stories That Heal

Bingo Night with Demitrea Kelley

Join us for an evening of fun, laughter, and connection with fellow caregivers.

Thank You to Our 2026 Sponsors

We extend our sincere appreciation to the sponsors whose support helps make this gathering possible.

We also extend our gratitude to our planning committee, speakers, moderators, volunteers, community partners, and every caregiver who has contributed to this year’s event.

A Personal Invitation From Me to You

This year has brought significant challenges to the sickle cell community. We have experienced heartbreaking losses, funding cuts, and uncertainty surrounding resources that many families depend on.

During difficult seasons, it becomes even more important to come together.

I hope you will make time for yourself this weekend. Come with your questions, your experiences, your hopes, and your willingness to connect with others.

You do not need to have all the answers. You do not need to have everything figured out. You simply need to know that there is a community ready to welcome you.

Brenda, Cynthia, and I look forward to sharing this meaningful experience with you.

Let’s continue educating, leading, and collaborating to create a stronger future for sickle cell caregivers and the people we love.

See you at the summit!

With love and gratitude,
Elle Cole (Carley Cole-Cavins)
Co-Founder, Sickle Cell Caregiver Summit
Founder, Cleverly Changing®