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Sickle Cell Disease

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Health & Recipes, Sickle Cell Disease
A companion for children with sickle cell disease

A New Companion for Children With Sickle Cell Disease

By Elle Cole
8 min read
In Health & Recipes, Sickle Cell Disease
My Special Aflac Duck is fantastic for children and their caregivers. Don't just take my word for it. Watch this video to get a better understanding of the duck and how it’s already making a difference.
Read more
Health & Recipes, Sickle Cell Disease

5 Facts About Sickle Cell You Should Know – World Sickle Cell Day

By Elle Cole
6 min read
In Health & Recipes, Sickle Cell Disease
As you know World Sickle Cell Day is very close to my heart. Everyday that I look at my daughter and she lives pain-free is a blessing. So far with a healthy diet and drinking plenty of fluids her life ...
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Health & Recipes, Sickle Cell Disease
2015 NIH Sickle Cell Forum June 25 and June 26, 2015 Recap Post #sicklecell

2015 Sickle Cell Forum Recap #SCDFORUM15

By Elle Cole
19 min read
In Health & Recipes, Sickle Cell Disease
Wow! There is so much I could write about, but in the interest of time, I have decided to share with you my top 5 most memorable moments while attending the 2015 Sickle Cell Forum at the National Institute of ...
Read more
Sickle Cell Disease
Listen to about my family's journey fighting sickle cell Part One

Fighting Sickle Cell on House Call With Dr. Mac (Part 2) #30forSickleCell

By Elle Cole
4 min read
In Sickle Cell Disease
I’m always reminded that God’s got this! He still has the world in His hands. We cannot take time off of life to just STOP. No, we must keep going and continue to fight for our families. We also must ...
Read more
Sickle Cell Disease
The right attitude #30forSickleCell

The Right Attitude #30forSickleCell

By Elle Cole
6 min read
In Sickle Cell Disease
Every year we are blessed to spend here on earth we should be thankful for the opportunities and experiences we have. As a parent of a child with Sickle Cell Disease it can be very easy to look at the ...
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Sickle Cell Disease

5 Myths About Sickle Cell Disease Debunked #30forSickleCell

By Elle Cole
9 min read
In Sickle Cell Disease
There are many myths associated with sickle cell disease, but today we will debunk a few and provide people with a better understanding of what sickle cell is and how it affects different types of people’s bodies. Myth #1 Only ...
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Sickle Cell Disease

Sickle Cell and Accomplishing Big Dreams #30forSickleCell

By Elle Cole
9 min read
In Sickle Cell Disease
One lesson I want my daughter to learn in life is that even though she has Sickle Cell Anemia, education is not optional. She is fully capable of learning and living with Sickle Cell. Everyday, I challenge her to do ...
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About Cleverly Changing


Elle Cole empowers moms, homeschoolers, and advocates for children with special needs. She is a mom of twin daughters, one of whom is living with Sickle Cell Disease and Type 1 Diabetes. She is the 2020 Advocating for Another WEGO Health winner, author of “A Sickle Cell Coloring Book for Kids. Feedspot named the Cleverly Changing Podcast #3 on the Top 20 Homeschooling Mom Podcasts list. She’s been featured on NPR, ABC 7, BBC World Service Radio, and many podcasts. She is a writer, speaker, and podcast host. Her website discusses wellness, personal finance, and parenting.

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cleverlychanging

I empower parents and advocate for children.
📍Maryland
🏆winning #SickleCell & #T1D Advocate
🎙@CleverlyChangingPodcast
📧 info@cleverlychanging.com

Elle Cole
You never know who you’ll run into, so be kind a You never know who you’ll run into, so be kind and carry on! 

Jack Black knew about sickle cell anemia. I was surprised, but encouraged as an advocate we always have to be willing to engage people in conversation. 

This has been just one highlight of many on my advocacy journey. 

Jack Black (@JackBlack) I can't wait to see your new movie #DearSanta that highlights a different cause in a unique way! 

7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations.

With Phil O., Nicole S., and @ElleCole 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
#jackblack #education #healthadvocate #advocacy #advocacymatters #sicklecell #sicklecellawareness #healthdiaparities #atlanta
Advocates hanging out getting to know each other a Advocates hanging out getting to know each other at the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

@scdwarrior1 
DrTomia Wooten Austin 
Sickle Cell Foundation of Minnesota
Sickle Cell Disease Association of Illinois
TaLana Hughes (@mrsthughes)
@sicklecellassoc 
@abadomchukwudozie 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
Day 2 of the 7th Annual Leadership Summit & Genera Day 2 of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
With day one of the 7th Annual Leadership Summit & With day one of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations behind us, I can't help but acknowledge how much joy I get from seeing people who are amazing sickle cell advocates in person. 

@sickle_cell_prodigy 
@throughthepainorg 
@sicklecellmn 
@sca365 

#sc3leaders7 #sc3leadership2023 #sc3summit7
#sc3leaders7 #sc3leadership2023 #sc3summit7 #sicklecell #sicklecellawareness #sicklecelladvocate #sicklecellcare #SickleCellAwareness #SickleCellDisease #sicklecelleducation #sicklecelleducator
It’s indeed an honor to have my books featured o It’s indeed an honor to have my books featured on the My Sickle Care App. 

Sickle cell disease – Education made easy.
All the coloring books are available at Amazon and also at cleverlychanging.com/shop

To download My Sickle Care Mobile app (@_mysicklecare) please type in the link below ⬇️
rb.gy/8qc3iq

#sicklecelldiseaseawareness  #sicklecelldiseaseeducation #sicklecell #sicklecellwarrior #sicklecellcaregivers #sicklecellbooksforchildren #sicklecellbooksforkids #sicklecelldisease #sicklecellanemia #sicklecelltrait #sicklecelleducation #blackhealth
Everything about this video touched me. Donating Everything about this video touched me. 

Donating blood isn't popular, but it should be. It can truly save lives. 

A few weeks ago an author i met online shared that she donated blood for the first time. I felt so much joy for her. There are so many people who need you to make that same commitment. 

Have you ever donated blood? 

📹: @hemaquebec

#donateblood #donatebloodsavelives #sicklecell #sicklecellawareness
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