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blood disorders

Home
 / blood disorders
Sickle Cell Disease
Parenting a child with sickle cell anemia

Sickle Cell Disease

By Elle Cole
5 min read
In Sickle Cell Disease
One of our daughters was diagnosed with Sickle Cell Disease when she was a couple of weeks old. Specifically, the doctor told us she had (SS) Sickle Cell Anemia.  So, what is Sickle Cell Anemia?  It is a genetic disorder, ...
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About Cleverly Changing


Elle Cole empowers moms, homeschoolers, and advocates for children with special needs. She is a mom of twin daughters, one of whom is living with Sickle Cell Disease and Type 1 Diabetes. She is the 2020 Advocating for Another WEGO Health winner, author of “A Sickle Cell Coloring Book for Kids. Feedspot named the Cleverly Changing Podcast #3 on the Top 20 Homeschooling Mom Podcasts list. She’s been featured on NPR, ABC 7, BBC World Service Radio, and many podcasts. She is a writer, speaker, and podcast host. Her website discusses wellness, personal finance, and parenting.

The Podcast

CleverlyChanging-Podcast-for-parents-and-kids-redefining-American-culture-for-themselve-the-first-episode-discusses-resolutions

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cleverlychanging

I empower parents and advocate for children.
📍Maryland
🏆winning #SickleCell & #T1D Advocate
🎙@CleverlyChangingPodcast
📧 info@cleverlychanging.com

Elle Cole
You never know who you’ll run into, so be kind a You never know who you’ll run into, so be kind and carry on! 

Jack Black knew about sickle cell anemia. I was surprised, but encouraged as an advocate we always have to be willing to engage people in conversation. 

This has been just one highlight of many on my advocacy journey. 

Jack Black (@JackBlack) I can't wait to see your new movie #DearSanta that highlights a different cause in a unique way! 

7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations.

With Phil O., Nicole S., and @ElleCole 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
#jackblack #education #healthadvocate #advocacy #advocacymatters #sicklecell #sicklecellawareness #healthdiaparities #atlanta
Advocates hanging out getting to know each other a Advocates hanging out getting to know each other at the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

@scdwarrior1 
DrTomia Wooten Austin 
Sickle Cell Foundation of Minnesota
Sickle Cell Disease Association of Illinois
TaLana Hughes (@mrsthughes)
@sicklecellassoc 
@abadomchukwudozie 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
Day 2 of the 7th Annual Leadership Summit & Genera Day 2 of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
With day one of the 7th Annual Leadership Summit & With day one of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations behind us, I can't help but acknowledge how much joy I get from seeing people who are amazing sickle cell advocates in person. 

@sickle_cell_prodigy 
@throughthepainorg 
@sicklecellmn 
@sca365 

#sc3leaders7 #sc3leadership2023 #sc3summit7
#sc3leaders7 #sc3leadership2023 #sc3summit7 #sicklecell #sicklecellawareness #sicklecelladvocate #sicklecellcare #SickleCellAwareness #SickleCellDisease #sicklecelleducation #sicklecelleducator
It’s indeed an honor to have my books featured o It’s indeed an honor to have my books featured on the My Sickle Care App. 

Sickle cell disease – Education made easy.
All the coloring books are available at Amazon and also at cleverlychanging.com/shop

To download My Sickle Care Mobile app (@_mysicklecare) please type in the link below ⬇️
rb.gy/8qc3iq

#sicklecelldiseaseawareness  #sicklecelldiseaseeducation #sicklecell #sicklecellwarrior #sicklecellcaregivers #sicklecellbooksforchildren #sicklecellbooksforkids #sicklecelldisease #sicklecellanemia #sicklecelltrait #sicklecelleducation #blackhealth
Everything about this video touched me. Donating Everything about this video touched me. 

Donating blood isn't popular, but it should be. It can truly save lives. 

A few weeks ago an author i met online shared that she donated blood for the first time. I felt so much joy for her. There are so many people who need you to make that same commitment. 

Have you ever donated blood? 

📹: @hemaquebec

#donateblood #donatebloodsavelives #sicklecell #sicklecellawareness
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