Prayerfully, I will take a few moments to share my story with you, and I pray for you as a parent and a spouse. If you are parenting a child with a genetic disorder or another type of illness let go of the guilt. Not every parent harbors guilt, but some of us do, as […]
Parents, Let Go of the Guilt and be Thankful Read More »
I haven’t wrote an update about my daughter in a really long time. I think about it often, but sometimes shy away from sharing. The fact is, she really is doing excellent overall, but there are many challenges that come along with Sickle Cell Disease (SCD) that I did not foresee. Regarding her overall health
Health Moment: Sickle Cell Update – 4 Years Old and Summer is Here Read More »
Join us and the Sickle Cell Disease Association of America, Inc. (SCDAA) for National Sickle Cell Advocacy Day 2013 Tuesday, June 25, 2013 at 6:00 PM – Wednesday, June 26, 2013 at 5:00 PM (EDT) in Alexandria, VA Location: Hilton Alexandria Mark Center Hotel 5000 Seminary Road. Alexandria, VA 22311 Sickle Cell Anemia is a health epidemic affecting many families in America,
National Sickle Cell Advocacy Day 2013 – June 25 and 26 Read More »
This year my family will take a trip to Great Wolf lodge, a family friendly resort and water park. I am excited about the trip and the break, but also concerned about my daughter’s Sickle Cell Disease (SCD) and pool safety. As many of you may know, one of my daughters is living with Sickle
Sickle Cell and Pool Safety Read More »
“In the United States more than 80,000 people have Sickle Cell Disease” (Hope & Destiny, p.1). In fact, it is one of the most prevalent genetic disorders in this country, but also one of the least discussed. I am sharing our story because what you don’t know can hurt you, or your child. Sickle Cell Disease
Parenting a Child with Sickle Cell Disease Read More »
I sat at my computer while tears rolled down the apples of my check. Is it OK for me to cry? Does it mean that I trust God less? Sometimes I feel sad that my child has Sickle Cell Disease and we have to go back and forth to the doctor. Sometimes I need added
My Little Hero and Her First TCD Test Read More »
“Pain in Sickle Cell Disease…Battling Stigma and Gaps in Knowledge” will be live online at http://www.sicklecell.howard.edu/ this symposium airs Today, May 10, 2011 at 2 p.m. EST. Fourth Roland B. Scott Memorial Symposium Tuesday, May 10, 2011 2:00-6:00 p.m.
Tune in @2 EST. Today for a Live Symposium on Sickle Cell Disease Read More »
