Parenting a child with Sickle Cell, isn’t easy, but with information, a strong support system, and compassionate doctors, the disease becomes bearable. Throughout this entire month, it is my goal to not only raise awareness about Sickle Cell Disease, but encourage people to learn more, donate, and support each other.
My husband and I first became passionate about this cause 5 years ago when our daughter was diagnosed with Sickle Cell Anemia. Since then we try to teach our children how to leave healthy lives and educate themselves as much as possible.
If you would like to share your story on my blog, please fill out the form below. If there is any information that you would like me to highlight and share this month please leave your request in the comment section at the bottom of the post.
3 goals for sharing #30ForSickleCell during National Sickle Cell Awareness Month
I want to encourage people to:
- Check your status (find out if you are a carrier of the trait). Contrary to common below many different types of people from many nationalities can carry the Sickle Cell Trait.
- Donate blood and make a donation to the Sickle Cell Disease Association of America, Inc. 3700 Koppers Street Suite 570 Baltimore, Maryland 21227
- Be informed and educate yourself about this disease.
The 30 posts for Sickle Cell will highlight life stories through interviews, organizations that help fight Sickle Cell Disease, and books and events related to the cause.
Please contact me, if you want me to share your related story.
Join the convo about #SickleCellDisease the #1 genetic disorder in the US #30forSickleCell http://t.co/gNjBq4LDGL pic.twitter.com/lYNx0mjRVc — CleverMom (@Cleverlychangin) September 4, 2014
The live form below is for people who have Sickle Cell Disease.
If you would like to share but do not have Sickle Cell please see the following links to share your story.
* Questions for people who support Sickle Cell Disease (SCD)
* Questions for people who have the Sickle Cell Trait
* Questions for people with SCD
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A New Companion for Children With Sickle Cell Disease
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A Sickle Cell Caregiver’s Perspective on School and ER Visits
Recently I was asked the following questions from a sickle cell advocate that I admire. I’m happy to share my Sickle ...
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A Caregiver Summit is For Sickle Cell Families
Sickle Cell Caregivers are invited to an online summit November 12-14 full of engaging dialogue, dynamic presentations, and caregiver networking. Many ... -
A New Companion for Children With Sickle Cell Disease
My Special Aflac Duck is fantastic for children and their caregivers. Don't just take my word for it. Watch this video to get a better understanding of the duck and how it’s already making a difference. -
Black People Are Not the Only Sickle Cell Patients #SickleCellis
Have you heard anyone say sickle cell is a disease only black people get? This statement is a myth, in fact, ...