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About Cleverly Changing
Hi, I'm Elle Owner of CleverlyChanging. My blog seeks to encourage, empower, & inspire others to live cleverly, changing when necessary. Perfect parenting, doesn't exist, but informed and attentive parenting does. I desire to regularly share savings tips, wisdom, and experiences I gain from everyday life as a wife and mother of twins with others so we can empower each other to become better parents and better people in general.
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Sickle Cell Disease Archive
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Sickle Cell and Pool Safety
Posted on May 6, 2012 | No CommentsThis year my family will take a trip to Great Wolf lodge, a family friendly resort and water park. I am excited about the trip and the break, but also concerned about my daughter’s Sickle Cell Disease (SCD) and pool safety. As many of you may know, one of my daughters is living with Sickle Cell Disease, a genetic blood disorder. For many Sickle Cell Patients, they are advised not to swim in public swimming pools or cold-water pools. Why does cold water pools affect Sickle Cell Patients? Cold water pools can cause a person living with SCD to be... -
Parenting a Child with Sickle Cell Disease
Posted on August 16, 2011 | 2 Comments“In the United States more than 80,000 people have Sickle Cell Disease” (Hope & Destiny, p.1). In fact, it is one of the most prevalent genetic disorders in this country, but also one of the least discussed. I am sharing our story because what you don’t know can hurt you, or your child. Sickle Cell Disease does not only affect African Americans it “affects people of all different racial and ethnic backgrounds, including African, Arabian, Israeli, Greek, Italian, Hispanic, Turkish, and Pakistani (Hope & Destiny, p.37). There are also several types of Sickle Cell Disease and a person can have more than... -
My Little Hero and Her First TCD Test
Posted on July 28, 2011 | 2 CommentsI sat at my computer while tears rolled down the apples of my check. Is it OK for me to cry? Does it mean that I trust God less? Sometimes I feel sad that my child has Sickle Cell Disease and we have to go back and forth to the doctor. Sometimes I need added strength to get through the days when I want to forget that this disease even exists, but it does. Therefore, I cannot keep my mind on those thoughts for too long because life goes on. I sat in my seat and said in the words... -
Cord Blood Banking: Why I Did It
Posted on May 21, 2011 | No CommentsWhen you find out that you are about to have a baby, tons of new information and products seem to be thrown in your face. You are instantly overwhelmed by so many thoughts: what the baby will look like, what you will name the baby, will the baby be a girl or a boy, etc. However, for many the only thought and hope that matters is that you want your baby to be born healthy. When I was in my third trimester of pregnancy I found out that both my husband and I were carriers of the Sickle Cell Trait.... -
Tune in @2 EST. Today for a Live Symposium on Sickle Cell Disease
Posted on May 10, 2011 | No Comments“Pain in Sickle Cell Disease…Battling Stigma and Gaps in Knowledge” will be live online at http://www.sicklecell.howard.edu/ this symposium airs Today, May 10, 2011 at 2 p.m. EST. Fourth Roland B. Scott Memorial Symposium Tuesday, May 10, 2011 2:00-6:00 p.m. -
In Honor of #BlackHistoryMonth: Help Save a Life, Join the Bone Marrow Registry
Posted on February 1, 2011 | No CommentsI previously mentioned that one of our precious daughters is living with Sickle Cell disease. This disease is more prevalent in African Americans, but anyone of any race/nationality can have sickle cell. Currently, one of the only cure’s for Sickle Cell Anemia is to have a Bone Marrow transplant. In Honor of Black history month, I am writing about things that affect the African American community and how we can help. I want to encourage you to help save the lives of people, like our precious daughter. The civil rights leaders fought to improve the lives of others and my... -
Sickle Cell Events in the DC Metro Area
Posted on May 29, 2010 | No Comments2010 Upcoming Sickle Cell Awareness Events “ART SPEAKS” Sickle Cell Awareness Day June 5, 2010 -
Sickle Cell Disease
Posted on May 16, 2010 | 9 Comments`Sickle Cell Disease One of our daughters was diagnosed with Sickle Cell Disease when she was a couple of weeks old. Specifically, Sickle Cell Anemia. So, what is Sickle Cell Anemia? It is a genetic disorder, in which there are a smaller number of red blood cells than the body should contain. These red blood cells are not round; instead, they are c-shaped like a sickle. As a result, blood does not travel throughout the body easily. It is important for blood to move freely through the body carrying oxygen and disposing carbon dioxide found in the body. In a...
