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Sickle Cell Disease

Can Editing DNA Help Sickle Cell Patients #30forSickleCell

By Elle Cole
10 min read
In Sickle Cell Disease
Recently, I read a Forbes Article entitled, “Why CRISPR Is An Attractive Approach To Treat Sickle Cell Disease” it states “Using CRISPR to edit a short segment of DNA in the cells, they activated a genetic switch that effectively raised ...
Read more
Health & Recipes, Sickle Cell Disease
2015 NIH Sickle Cell Forum June 25 and June 26, 2015 Recap Post #sicklecell

2015 Sickle Cell Forum Recap #SCDFORUM15

By Elle Cole
19 min read
In Health & Recipes, Sickle Cell Disease
Wow! There is so much I could write about, but in the interest of time, I have decided to share with you my top 5 most memorable moments while attending the 2015 Sickle Cell Forum at the National Institute of ...
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Sickle Cell Disease
Genetics and #sicklecell with House Calls With Dr. Mac

House Calls with Dr. Mac discusses Sickle Cell #30forsicklecell

By Elle Cole
10 min read
In Sickle Cell Disease
About two years ago, I heard a friend praise her OBGYN with fond admiration. In my mind, I laughed and thought, “this girl can’t be serious,  who loves their OB that much?” Well, not long after, I met Dr. Mac ...
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Sickle Cell Disease
Brazilian doctor Jane Hankins from @StJude discusses sickle cell disease #30forSickleCell #sicklecell

Making A Difference in the Lives of Patients #30forSickleCell

By Elle Cole
7 min read
In Sickle Cell Disease
Did you know that there is a large population of Brazilians who are living with Sickle Cell Disease (SCD)? It is estimated that about 45,000 people in Brazil have SCD. Today’s interview is with Dr. Jane Hankins who is from ...
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Sickle Cell Disease
SCD Infographic #sicklecell #30forsicklecell

Sickle Cell Disease – The Truth About the Cure #30forSickleCell

By Elle Cole
10 min read
In Sickle Cell Disease
In 2008, while reading Hope & Destiny, I first learned that there was a cure for sickle cell disease.  When our blood test confirmed that my husband and I were both carriers of the sickle cell trait, my OBGYN also told me ...
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Sickle Cell Disease
30 posts for sickle cell. Learn more about Sickle Cell Awareness #30forSickleCell.

How Can Family Members Support Someone With Sickle Cell? #30forSickleCell

By Elle Cole
7 min read
In Sickle Cell Disease
About 2 years ago, Trey reached out to me after hearing me talk about starting my blog on a podcast. On the podcast I mentioned that after my daughter was diagnosed I needed a community that provided support. Although I ...
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About Cleverly Changing


Elle Cole empowers moms, homeschoolers, and advocates for children with special needs. She is a mom of twin daughters, one of whom is living with Sickle Cell Disease and Type 1 Diabetes. She is the 2020 Advocating for Another WEGO Health winner, author of “A Sickle Cell Coloring Book for Kids. Feedspot named the Cleverly Changing Podcast #3 on the Top 20 Homeschooling Mom Podcasts list. She’s been featured on NPR, ABC 7, BBC World Service Radio, and many podcasts. She is a writer, speaker, and podcast host. Her website discusses wellness, personal finance, and parenting.

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cleverlychanging

I empower parents and advocate for children.
📍Maryland
🏆winning #SickleCell & #T1D Advocate
🎙@CleverlyChangingPodcast
📧 info@cleverlychanging.com

Elle Cole
You never know who you’ll run into, so be kind a You never know who you’ll run into, so be kind and carry on! 

Jack Black knew about sickle cell anemia. I was surprised, but encouraged as an advocate we always have to be willing to engage people in conversation. 

This has been just one highlight of many on my advocacy journey. 

Jack Black (@JackBlack) I can't wait to see your new movie #DearSanta that highlights a different cause in a unique way! 

7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations.

With Phil O., Nicole S., and @ElleCole 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
#jackblack #education #healthadvocate #advocacy #advocacymatters #sicklecell #sicklecellawareness #healthdiaparities #atlanta
Advocates hanging out getting to know each other a Advocates hanging out getting to know each other at the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

@scdwarrior1 
DrTomia Wooten Austin 
Sickle Cell Foundation of Minnesota
Sickle Cell Disease Association of Illinois
TaLana Hughes (@mrsthughes)
@sicklecellassoc 
@abadomchukwudozie 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
Day 2 of the 7th Annual Leadership Summit & Genera Day 2 of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations 

#sc3leaders7 #sc3leadership2023 #sc3summit7 @sccconsortium #sicklecell #sicklecelldisease #SickleCellawareness
With day one of the 7th Annual Leadership Summit & With day one of the 7th Annual Leadership Summit & General Assembly of Patients, Caregivers, and Community-Based Organizations behind us, I can't help but acknowledge how much joy I get from seeing people who are amazing sickle cell advocates in person. 

@sickle_cell_prodigy 
@throughthepainorg 
@sicklecellmn 
@sca365 

#sc3leaders7 #sc3leadership2023 #sc3summit7
#sc3leaders7 #sc3leadership2023 #sc3summit7 #sicklecell #sicklecellawareness #sicklecelladvocate #sicklecellcare #SickleCellAwareness #SickleCellDisease #sicklecelleducation #sicklecelleducator
It’s indeed an honor to have my books featured o It’s indeed an honor to have my books featured on the My Sickle Care App. 

Sickle cell disease – Education made easy.
All the coloring books are available at Amazon and also at cleverlychanging.com/shop

To download My Sickle Care Mobile app (@_mysicklecare) please type in the link below ⬇️
rb.gy/8qc3iq

#sicklecelldiseaseawareness  #sicklecelldiseaseeducation #sicklecell #sicklecellwarrior #sicklecellcaregivers #sicklecellbooksforchildren #sicklecellbooksforkids #sicklecelldisease #sicklecellanemia #sicklecelltrait #sicklecelleducation #blackhealth
Everything about this video touched me. Donating Everything about this video touched me. 

Donating blood isn't popular, but it should be. It can truly save lives. 

A few weeks ago an author i met online shared that she donated blood for the first time. I felt so much joy for her. There are so many people who need you to make that same commitment. 

Have you ever donated blood? 

📹: @hemaquebec

#donateblood #donatebloodsavelives #sicklecell #sicklecellawareness
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