Parenting a child with Sickle Cell Disease isn’t easy, but it can be done with grace, finesse, and love.
2017 was a year of purpose and praise. Each year, the dedicated staff of St. Jude Children’s Research Hospital work to fulfill founder Danny Thomas’ dream to ensure that “No child [dies] in the dawn of life.” The mission to fulfill this purpose is ongoing through research that serves children and adults in need of […]
Supporting St. Jude on the Hill Read More »
Hematologists, sickle cell patients, and families with loved ones living with sickle cell disorders are hoping for a universal cure for sickle cell patients. In 1982, doctors at St Jude Children’s Research Hospital were the first to cure the genetic blood disorder using a bone marrow transplant. In fact, in 2014, I had the privilege of
Possible Cure for Sickle Cell Found in Paris Read More »
Thursday night September 15, 2016, The Divine Nine and St. Jude Supporters gathered in Long View Gallery in Washington, DC. Longtime friends and supporters joined together during Black Caucus week for fun, celebration, awareness, social engagement, and a call to service. We also joined to discuss and increase awareness about our need to continually support Sickle
Sickle Cell and St Jude: A Call To Service Read More »
Recently, I read a Forbes Article entitled, “Why CRISPR Is An Attractive Approach To Treat Sickle Cell Disease” it states “Using CRISPR to edit a short segment of DNA in the cells, they activated a genetic switch that effectively raised the levels of fetal hemoglobin in red blood cells, turning the cells healthy.” 1. Can
Can Editing DNA Help Sickle Cell Patients #30forSickleCell Read More »
St. Jude Children’s Research Hospital is one of the institutions at the forefront of sickle cell disease (SCD) research. The hospital does clinical research at their facility in Memphis, TN. Then they transfer their findings to help healthcare professionals around the world offer better care to children and more hope for adults with sickle cell.
Hope For Adults with Sickle Cell #30forSickleCell Read More »
Ever wondered why I call my sickle cell awareness campaign #30forsicklecell? Well, September is Sickle Cell Awareness Month and it is 30 days long. Unfortunately, it seems that Sickle Cell only gains national attention for 30 days, and while I mainly run my campaign to raise awareness about sickle cell during the month of September,
Why #30forSickleCell? Sickle Cell Awareness Month Read More »
One of the largest sickle cell foundations is the Sickle Cell Disease Association of America. The goal of the SCDAA is “to advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search
Tomorrow Sept 13th is the #SCDAA #SickleCell Twitter Party Read More »
