One of the largest sickle cell foundations is the Sickle Cell Disease Association of America. The goal of the SCDAA is
“to advocate for and enhance our membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.”
What’s a Sickle Cell Twitter Party?
Tomorrow, the SCDAA foundation is hosting a twitter party to help raise awareness about different sickle cell disorders. If you’ve never heard or participated in a twitter party, here’s what you should know. A twitter party is a fast-moving conversation that takes place within Twitter. All of the participants use their own twitter accounts to follow one hashtag: #Stand4SCD, and win prizes. In order to take part visit the SCDAA site to register. Once you register on the right side you will receive a ticket confirming your registration.
Register for the #Stand4SCD Twitter Party:
— SCDAA (@SCDAAorg) September 8, 2016
Please don’t be alarmed, at the time of registration the SCDAA will collect your mailing address and other information so you will be able to redeem your prize.
Personally, I really enjoy twitter parties because the conversations are usually informative and they connect lots of different people together. Please join us tomorrow September 13 from 12:00 until 1:30pm for the conversation. I will also be participating.
During the conversation the SCDAA will share sickle cell related facts.
What are the prizes?
The grand prize is a Monster x Meek Mill 24k headset
Today’s sickle cell shared quote:
Remember throughout the month of September you can follow the hashtag #30forsickle to learn new information about sickle cell disorders.
Hematologists, sickle cell patients, and families with loved ...